3: Autism & Well-being

Project 3: What are the important risk and success factors throughout the lifetime?

Short rationale:

There is good evidence that ASD is genetically, cognitively and neurally heterogeneous and that ASD-related phenomena are fractionable and symptoms do not necessarily proceed from the same cause. Given this heterogeneity of ASD, and developmental pathways in general, a crucial constraint of ASD research lies in its focus on univariate outcome measures while ignoring its multivariate structure. A number of researchers have, therefore, promoted the value of analyzing psychiatric problems and concepts within a network perspective to psychopathology. Here, disorders are conceptualized in terms of systems of interacting factors, which may involve variables classically viewed as “symptoms”. In this REACH-AUT project, we focus on the multivariate pattern of risk and success factors for subjective well-being in ASD. We work with existing data from the Dutch Autism Registry (Nederlands Autisme Register, NAR) and the routine outcome measurements of the Dr. Leo Kannerhuis, a tertiary mental health clinic specialized in ASD assessment and treatment across the life-span. We organize regular feedback sessions on all different subprojects with our feedback panel consisting of ASD adults and professionals working with people with ASD.

d’Arc members: Marie Deserno & Hilde Geurts

Funding: Reach-Aut, Zon-Mw, UvA, Leo Kannerhuis